Week One: |
 |
James
Arthur Pollnow July 25, 1956 - May 1, 2008
If you haven't gotten a chance, please read through my
memorial page to Jim to learn
more about him and his life. |
|
Thank you, those of you
who called, emailed or sent cards. I know that it wasn't just me
that was touched by Jim's life. |
|
|
It's May again and I am faced with a task I would rather not do; but
instead I do it as part of the ritual of remembering those who have
passed on. For some time after Randy passed away, and while I had a
vehicle, I frequently returned to Randy's grave to put out a new
floral arrangement. In part, these flowers were not about me but
about my desire to have Randy still recognized and remembered. The
other part was about me and how I was dealing with my grief. Though
I loved him no less, as the years have gone by, my visits to Randy's
grave decreased. Instead of every few months, I have averaged just a
couple visits a year for the last few years. |
Without a vehicle I have only been able to visit Randy's grave once
since I held the Memorial Service and left Jim there a year ago. The
few times over this last year when I was able to borrow Joyce's van
to make a trip to visit Carolynn (Randy's mom), I did not have the
extra time to go over to the cemetery. But I have still been able to
spend the extra time and thought about Jim throughout this year when
I have reflected on the urn in the living room which holds a small
amount of Jim's ashes. |

MouseOver |
 |
 |
|
|
Of course, now that it's
May, I have the death of two partners to commemorate, and it was
time to arrange for another personal trip to the cemetery. Several
close friends had not been able to attend Jim's Memorial, and wanted
to be companions on this sad anniversary. Last year, while I was
giving my eulogy, Carolynn was in the hospital about to undergo a
second back surgery and Jim's and mine dear friend, Mike P, was
out-of-town. On this past fairly sunny Sunday afternoon, I drove
Joyce, Mike, and myself over to North Lima where we met up with
Carolynn at the cemetery. |
 |
The area with the grave has changed
quiet a bit over the years. When we laid Randy to rest there 15
years ago, there were no other headstones around. The area
frequently flooded those first few years, and the grave always
seemed to need "just a few more inches" of dirt to fill in the hole.
Now, the ground has leveled out, grass has grown, and more graves
has filled up the empty spaces. Through those years, there was every
a small tree planted at the neighboring grave that grew to be a
couple feet tall before it was removed. |
Ah, but that's all just the small talk.
While I was just writing about the terrain, and while Carolynn was
chatting at the gravesite, all I could really think about was about
how this is place where I have left the two men I loved the most. |
 |
mIkIE uses his camera, and
the mirror at the bottom of the staircase, to get some pix of
himself |
|
|
A Project - Digging a Garden |
 |
Joyce and her neighbor across the
street planted their own vegetable garden last year. Since I got to
partake of some of their produce (mmm that means I had a lot of BLTs
for lunch last year. LOL), I wanted to help them out with the garden
this year, so they have a bigger and better harvest. |
|
|
With the help of our good friend Mike
P, whom we call on for all big projects, he and I tore up more of
the yard nearly tripling the size of the garden. There's still a lot
of work to do since we weren't able to make arrangements for a roto-tiller.
But we'll continue to turn the soil a couple more times and finish
removing as much grass as possible over the next few days, and then
be ready to plant up a whole field of veggies! |

MouseOver to see the original area |
|
Unfortunately, I paid for
my good deed. After all that digging, I rode my bike home. I feel a
little achey; but not so bad that I didn't hesitate to mow my hilly
lawn before finally calling an end to my yard-working day. I
believed that after rinsing off the dirt and grass, and then taking
a nice soak in a hot tub, I'd be go to good. Unfortunately, by the
time I was cleaned, dried and trying to get dressed, it was all I
could do to keep from hollering! LOL Ouch! It seems all that
shoveling I did was tooo much for my 47-yr old back muscles. |
|
Another Project - Finding a Driveway |
 |
After taking a day off and resting my
back, I was getting too much cabin-fever, and had to head back
outside the following day. I behaved though and only stayed out for
a while, as I sat down on my butt and began to clear off the top
section of the driveway.
Take note of the white U-shaped pole down at the bottom of the
drive, near the tree and fence. |
This following picture was
taken from where that U-shaped pole lies (you can see one end of it
near the bottom left of this pix) and looks back up across my yard.
I think this picture probably best shows how the yard is in three
levels. |
 |
Click on the picture to
see a larger version, in which you can easily see Joxer in the yard
and Aries and Zeus up on the back porch |
|
Yet Another
Project - Planning a Water Feature |
What I've really been
thinking about lately while doing my yard work, has been what I want
and need to do to put a fountain and pond into my yard. |
Diagram for Proposed
Backyard Improvement |
 |
|
(MouseOver
to View) |
|
|
|
Believe it or not, there's a poor
bedraggled azalea bush in the mess on the hillside. At some point,
as I clean up the hillside, I'll have to make a decision on which
trees and bushes to keep and to take out. I'll have to see how the
bush does over the next couple of weeks (and I'll need to read up on
azaleas, praise be to Google LOL) before I know what to do with this
plant. |
 |
 |
Last month, I got pix of Aries on the
porch.
This time it's a pix of Zeus and Joxer |
Where no
mIkIE has gone before |
Though I went with mixed feelings,
I saw the new Trek movie last night. Oh, I didn't have mixed feelings that
I wouldn't like the movie. In fact I was quite excited to see it.
I've been a trekkie since I was only 6 and called it "tar twek". |
I
had only read limited hype about it, but knew (as always
) it
would include some time-travel. I wasn't certain at first if I much
liked the photography style; but as the movie moved along, it kept
me on the edge of my seat.
By the end, I have to say that I really
liked this movie. It's definitely no longer the Trek of the past. |
 |
However, I had the mixed
feelings about seeing the movie for personal reasons. I think I
chose a good method to handle the situation and am glad to say that I very nearly even "enjoyed" the movie. |
|
Maybe it's just my "comeuppance"
for living with this illness for so long
 ; but there seems
to be too many times when things that ought to be "fun" just aren't.
Matter of fact, anything and everything isn't so much fun anymore
because it all comes with a bite of sadness. Don't worry though, I
think I do well because I don't dwell on those moments of sadness; but there's no
escaping the momentary sting when the bite comes. |
|
Though we were both Trek
fans, my Jim was a HUGE trek fan. We did the Trek costume thing at
Halloween. Denise Crosby interviewed Jim in the movie "Trekkies"
(as you see Jim even had a trek uniform!), and we built an NCC-1701
float for one of our Pooltag
events. |
|
Just 13 months ago,
staying alive to see this movie was one of the many reasons I
offered up as encouragement, hoping Jim would make it through those
horrible days in the hospital. It still saddens me that I had to
sell off and/or leave behind so much of his Star Trek memorabilia
collection when I had to abandon the house. |
|
When the trailer for this
Trek
movie first started coming out a couple months ago, my OhioBrother
Richard
(who has probably been one of my best friends through nearly all the
years that I had with both Randy and Jim) emailed me from the road
(he's a trucker) to make arrangements to see this. He already
figured I'd have mixed feelings, but still would want to go see this
movie - especially since it would hit the theaters in May - the
month I'm commemorating the first year without Jim, and the 15th
without Randy. It seemed appropriate that the same friend who took
me to the amusement park the year after Randy passed away, would also
be the one to go the Trek movie with me the year after Jim passed
away. |
|
|
I wish I could really "enjoy"
movies - and birthdays and Christmases and etc.; but dammit, after having two
loves taken from me, there just isn't enough joy left in me to "enjoy"
anything. Oh, I may do things that I like and have a nice time; but
there's no real joy left in Muddville. Everything I've done in the past 15 yrs has always tinged
by the knowledge that I have done those activities without Randy.
Now everything is tainted because I do these things without Randy
AND now without Jim. I felt this way for a long time after Randy
died (until Jim turned my attitude around), so I imagine I'll be
troubled by this aspect for being a "widower" for some time to come. |
|
I'm sorry that my writings
here tend to be a bit on the despondent side this last year. I
really did much more "enjoy" those years when I got to write about
happier news and adventures. But, as I learned the hard way once
before, death has a way of changing everything. However, as I explained to Richard as we talked about Jim after
the movie, I'm only sad, not really pessimistic. I mean I do go to
bed every night expecting to wake the following morning, and
expecting to feel better than I did the day before.
I'm really a very optimistic guy. That fact just gets hidden behind
me being a "worrier" - but I worry for good reasons.
Just look at what's happened in the 11 years of this blog! (More
about that later on!
Keep reading!) |
|
|
The problem with my life
is that the absence of Randy and Jim has left holes in
my life, and in many of the other lives that were touched by my two
men. In my life, the holes that have been left behind are huge
craters. As hard as it's been, I've been trying to climb out of those holes
and have done pretty well. It's just easy to lose
my balance and slip back over the edge and down into holes that big
though. |
|
|
Week Two: |
WOW Update |
It's been a month since I
posted about my issues with the World of Warcraft game, so it's time for a quick update. First, I
want to publicly thank Joyce for cutting her chatter about the game
down to a normal level. After the day last month when I blew up about this whole
issue, Joyce actually didn't say anything about WOW for
two whole blessed days. Now she talks about the game in
general terms with her friends who are not playing the game, and
saves all that boring game strategy talk for when she and John spend
time together. |
|
Even though I wrote an email to
Jodi, I surmised correctly that she still hasn't even read it.
Periodically, John relays the message that Jodi is "waiting" for me
to log on and play the game. What a friend she is, huh? Six weeks*
later and she still hasn't read my emails or IMs. Everyone else that
knows me, knows they can check here, in my blog, to see what I'm up
or what's on my mind. It doesn't look like she even reads this blog
either. |
|
But I'm all over that nonsense now. I
just wanted you to know that the crazy people were still trying to
get me to play their damned game; but they were trying it less and
not as stridently anymore. WooHoo! |
|
An Issue in the
House |
*Speaking of "six weeks", that's the
same amount of time since I told my housemate that he was eligible
for food stamps and that he hasn't done anything about it. Problem
with all that is that is means that, just like when Sean was in the
house, Michael, the poor guy on disability, is "supplying" food to
someone who should be supplying their own. |
|
And this did become even more MY
problem when I received NO food stamps benefits this month. It seems
the nice people at Human Services were holding my case
"open/pending" so that when John applied they could easily access
the utility bills and payments. I got my case out of pending and got
my benefits. |
|
However, rather than apply for his
benefits, John continued to put off going to Human Services. Finally
(after badgering his mom into a ride downtown), when he did decide
to turn in the application , he did it too late in the afternoon
(after 2pm) to have a personal interview which would have provided
him food stamps within 48 hours. Now he will have to wait for a
packet in which to return his utilities bill and payments, etc
before his phone interview. |
|
Adding insult to injury, with at least
two weeks before he'll finally end up receiving his own food stamp
benefits, John suggested tonight that I could walk to the
grocery, swipe MY food card, and purchase US dinner.
 Dream
on, dumb ass!
ROFL |
|
Now I just need to figure out how to
hide my food so he doesn't eat it
at 3 o'clock in the morning, while he's playing WOW and I'm
sleeping. |
Weird
Day of Good News |
Here I am in the middle of
the month and boy what a weird day it was. |
|
|
I had made arrangements to
use my OhioMom's van for a few hours to handle paying the monthly
bills and for a trip to the doctor. When I stopped by the bank in
the middle of these errands, I was surprised when the teller wished
me a Happy Birthday.
I thought that was odd considering my bday was about a month and a
half ago. Thinking about it, the teller quickly realized that since
my account was a business account (for ReigningPages and the
ComputerTutor) the computer was actually flagging the anniversary of
when the account was opened. |
|
That would make sense.
Eleven years ago, I opened up a banking account for ReigningPages
(the company) and the following week I registered reigningpages.com
(the domain). I would like to thank my Mom for helping me keep
reigningpages.com online this year. |
|
Bet you wondered where the
"Save reigningpages.com" donation campaign was this year. LOL
I have always tried to pay for my domain and only resorted to donations for these last few years. Between the 3-yr lowered SS check, and the events of last year, I was very thankful to have had friends who helped me stay online through those tough years.
(Of courser, I'll never turn down any assistance in getting the yearly domain fee
of about $125 ) Unfortunately, I don't have a credit
card, and although networksolutions said I could pay through PayPal,
it stated that my PayPal account have to be backed by a credit card. Doh!
I've used Jim's credit card to resolve this issue other times; but
that isn't an option anymore. I guess I'm going to really have to
get a prepaid credit card to help out in these situations; but
thankfully, my Mom came to the rescue with her credit card and
handled my bday present all at the same time. |
Happy
11th birthday reigningpages.com |
|
As I mentioned, this bank
stop was on the way to the appointment with my doctor; and as usual
my thoughts were a bit troubled on the way. Since my appointments
have been spaced out more this past year, I knew I'd have to catch
the doc up on what has happened since the first of the year. You
know things like I turned 47, haven't smoked in 3 months, and have
been biking again. And bad things like my recent barfing, my joint
aches and pains, and the depression of losing a partner just a
year ago. |
|
|
While I was thinking more
somber thoughts and about to discuss some of my more troubling
issues, the doctor had a conversation opener that stopped me in my
tracks like the bank teller had done with her birthday greeting.
Doctor Mark greeted me with a "happy anniversary" as it was 8 years
ago this month that I became his patient. |
|
Back then, about a year
and a half after my second hospitalization with pneumonia and back
off any meds (resistance issues and there were no more meds to try),
I only had 44 t-cells and my viral load was 176,000. I switched to
this doctor, who was much kinder than my previous doctor* and more
willing to try the newer meds coming out in 2001 to find a combo
that would work for me. (*looking back now, I see that my first
doctor was having personal issues watching his AIDS patients passing
away. He's now been banned from the area hospitals and is having
many legal problems from his drunk-driving.) Unfortunately by May,
2003, I was back down to 69 t-cells and a viral load of 300,000.
However, the doc and I finally got the right combo that didn't make
me sick and was going the trick (Reyataz, Norvir, Viread, Videx EC).
By May 2004, thanks to my doc's help, my adherence and the love of a
good man, I reached my first undetectable viral load ever in those
first 14 years of having AIDS. |
|
Now, for the second time
in the last 12 years, my t-cells have actually gone higher than 300.
Back in Feb of 2007, they climbed to 311, before falling back into
the low 200 range that has keep me on Bactrim (as a prophylaxis
against PCP pneumonia) for all the years. Unbelievably, the results
this time came back at a super 305! And since it's been a year since
the last time I had a blip in my viral load (2500 in 4/08), I just
lived my first whole year (out of the last 17) with an undetectable
viral load the whole year!! |
|
I had some extra good news
out of this visit to see the doctor - I get to drop a med!! With my
t-cells holding so stable, I don't have to take the antibiotic
Bactrim anymore. Of course, that isn't the one that makes me barf,
so I would have happily kept on taking it LOL (norvir is the culprit
in the nausea). It'll be odd not taking this pill as it's the ONE
med that I have never slacked off taking in the 11 years since I
last had pneumonia. But I'm sure not complaining about losing a med
- no way! I started off taking 24 pills a day, hit a high of 32, and
now I'm down to only 6 a day - 2 first thing in the morning and 4
with dinner every night. WooHoo! |
 |
|
The only downside on this
visit to see the doctor was my doctor himself. He seemed a bit
envious of how healthy I looked and my incredibly low 146
cholesterol level. Not surprising either, as he was also looking
pretty gaunt, like he had been through some sort of illness himself.
I probably should have just asked if he had been ill; but I was
surprised by the change in him since the first of the year. I sure
hope he's doing okay. I've already outlived two partners, 8 cockers
spaniels, and a ton of friends, I'll be very distressed, if my
"quit-smoking curse"
acts up and I end up outliving my doctor too.  |
|
|
There was one last odd
incident, but a good one, to end the day. At the end of last season,
right after I had moved to the new house, I was sure that the
propane tank on the gas grill had finally run dry (going out in the
middle of cooking the brats really sucked). |
 |
I had planned on taking the tank and
getting it filled while out running my errands. However, when I went
to lift the tank, I was surprised by how heavy the tank was!
The dang thing is still full ... I think.
 
I grabbed some fresh ground beef and buns while I was out, and had
my first cookout of the year to celebrate the good news from the
doctor. |
|
|
Week Four: |
Update on
the Yard |
Slowly, but surely, throughout the month, I've been uncovering the
shared driveway between the two houses. |
|
The next step I'll probably take is to move
the big pile of dirt that I've accumulated. I know of a few holes
and dips in the lawn that I could use it for. I've already used some
of the dirt to fill in the spots in the backyard where the other
clothesline poles used to stand. Before I can finish up this whole
uncovering-the-bricks projects, I'll need to get an axe. The tree
down at the bottom of the drive has a few small to medium roots that
haven't stayed under the bricks; but are running on top for several
feet at a time. I'll need to play "Paul Bunyon" if I ever expect to
clear off the whole bricked area. |
 |
 |
Meanwhile in the front yard . . .
In a few weeks, I'll have a row of
cosmos starting to bloom in front of the house - even if the row of hollyhocks
that I planted, just in front of the porch, never
come up. |
 |
|
|
In the backyard, the
morning glories are growing AND beginning to wrap tendrils
around
the piece of fencing I have given them to climb. |
 |
 |
In a few months, I hope,
Aries will be standing in front of a wall of morning glory vines and
flowers |
(near)
Encounters with Wildlife |
Living in a city, even a
small one, you don't get to see much wildlife besides bugs and
birds. Once in a while, a stray raccoon might show his masked face
at night rooting through a trash can; but that's about it. However,
I did have two recent encounters with some local wildlife. |
|
|
One afternoon, as I
wheeled my bike into the house after an outing in the park, the dogs
seems extra antsy about going outside. (They "always" have to go
outside whenever I come back into the house because they are "good
boyz".) I noticed Corissa, the kitty, was peering out the back
kitchen window, meowing, and a bit antsy herself. As I opened the
door, the dogz tore off across the yard, straight for the back
fence, barking loud enough to raise the dead. Of course, I went
outside also to figure out what had my animals all excited. Standing
by the fence, I heard what sounded like a large flock of birds in
the tree squawking loudly. |
|
|
Looking over the fence and
down onto the back brick patio area, I saw the cause of all the
uproar. A little baby bird had fallen out of a nest and was loudly
cheeping. What I hadn't seen up until that point though was a
neighborhood cat slinking by the retaining wall. Like a flash of the
lightning, the cat streaked out, snatching up the baby bird and
running off through the neighbor's yard. The tree above the boyz and
the me burst into a riot of wings and screams as a flock of 20-30
swooped off after the bird-napping cat. I never saw what happened
with the bird or the cat; but I imagine it was just the Circle of
Life rolling along.
 |
|
I got another up-close and
personal glimpse of the area's wildlife when a deer dashed out in
front of Joyce's van while I was driving it a few evenings ago.
We have a friend (Mike P, seen hanging out in the garden in a
picture in the next section below this) that visits most Sundays, who lives just over in
Massillon. Several times over the last few months, I've seen deer
running parallel to the road in a field we pass when I drive our
friend home. Once, about a month ago, a deer actually jumped into the road; but here had been
enough time for the van in front of me, and me in Joyce's van, to slow
down (with only a little skidding
)
and not be in an accident. |
|
|
However, last night, just
as the sun was about to finish setting, in that last dim light
before night, I saw the deer step out onto the road, having been
hidden in the weeds and bushes by the side of the road. What a
surprise that was!
Luckily I saw the deer just in time to slam on the brakes and skid
to a stop without hitting it. Luckily, the deer saw the van in time
to turn around and high-tail it out of there before it got hit. I
think I'll be taking the main road and not this back road from now
on when going back and forth to Massillon. |
Gardening
News |
Things are coming along
nicely in the big garden across the street from Joyce's house. While
Joyce provided the plants and seeds, and Mike G provided the land,
I've tried to do my part (so I can eventually reap some of the
harvest) by providing labor. I spent several hours one afternoon
rooting through the garden and de-weeding. I could only do the top
half of the garden right now, as I need the plants in the bottom
half to be just a little bit bigger than they are right now (just
popping out of the ground) so I don't accidentally "weed" them right
out of the garden.
 |
 |
 |
Going nearly two weeks
without any rain but two tiny showers, the ground in the garden was
getting quite packed down, dried out and hardened. After I finished
the weeding, I used one of my many gardening tools to break and
loosen the soil (that's why the top half of the soil looks darker in
the picture), so when it does rain, some of the water will soak into
the ground. |
 |
Mike P looks to the sky to
see if today might be the day we get some rain. |
|
I'm very sorry this next section is so
long without any pictures; but I really need to talk about some
issues I'm having with my friends and issues that I'm having in my
head. |
mikie vs
Insanity and Depression |
Though I had hoped to have already worked hard enough this
past year to bring some order and peace to my life, I find that I
still have a ways to go. You know I've always said that it takes
work and patience to fix things; but I really thought that by now I
had done enough and had waited long enough for things to improve. No matter how well I've tried to dress up
my stories from the past year or how optimistic I've tried to sound,
the past year has been truly horrible. My despair and my frustration
about nearly everything is near overwhelming at this point and I've
just about reached my wit's end.  |
|
While in the prior two
years, I had lost my car, lost my home on 14th and lost Gabby, in
just this past year, I lost Jim, lost another car, lost another
home, kicked out one roomie, lost another roomie to a gaming
addiction and now my best friend and I are having "issues". I
really have no clue what to do next nor what I want to do now. I do
know that I've never considered a move back to NC more than I have
been thinking about it recently. (sorry, Mom. I'll get around to
talking about that...eventually. LOL) |
|
mikie vs
A Few Friends |
As it usually does, all
this came to a head with just one simple event. |
|
Earlier in the day when I
left my best friend's (my OhioMom) house, I left her with one
request - to contact her son (John, my housemate) to determine when
they would like to play cards later in the evening. Upon returning
home, I made the same request to my housemate. (Since John is NEVER
on time and since I had to wait on him at Christmas for an
hour and a half ,
I left the time to play cards up to when John thought he would be
ready) Several hours later,
just as I was typing an IM to my housemate and OhioMom inquiring
about the plans I had asked them to make, my OhioMom buzzed in inviting me up. When I asked
if she had arranged a time with her son, she informed me that he was
already at her house. |
|
Needless to say I was
quite shocked by this. I had been patiently waiting for my friends
to do one simple thing - discuss and notify me of when they would be
available to play cards. Of course, I didn't need a definite
"set-in-stone" time; but a ballpark figure, so I would know when to
grab some dinner - which I have to do to take my daily HIV meds.
Instead, neither had bothered contacting the other about making
arrangements. Unbelievably rude, my housemate had just left the
house and gone on without me!
To make the situation even worse, he had just walked off from our
house, without even telling me, leaving the front door open.  (This
is an ongoing problem when at least twice previously, upon returning
home from playing cards at Joyce's, I have found that John had NOT
even locked the front door) |
|
Such a little
matter it would seem, right? However, it was one of many, from both
John and Joyce, and I'm really tired of it. |
|
mikie vs
John |
Of course,
I've already discussed my issues with John before. I'd rather not
bore you too much about him but sometimes I'm simply so
flabbergasted by his actions that I have to vent about them.
Although I may fuss to Joyce about forever complaining about her
husband, at least Cliff as the excuse of probably Alzheimer's mixed
in with the damage from a couple of strokes and oxygen-deprivation
to his brain during the time he was hospitalized for 3 months, John
has no such excuse. I have known quite a few bi-polar people in my
life, and John is the only one that can't hold a job or handle the
duties of his life - liking remembering to eat, sleeping like a
human and not a nocturnal animal, or closing the front house to his
house. |
|
Twice in the
previous two weeks, after chatting with Joyce and telling John I was
going up to Joyce's house, I have arrived at his mom's house to find
her gone. Both times, just after I left our house, John has called his mom and,
incredible as it seems, asked for a ride to her house. I gave Joyce
the benefit of the doubt both times (though how she could explain
picking up John, and not me, knowing I was on the way to her house
already
is unknown to me). But, as in baseball, this was the third strike
was John. Unfortunately when I then chose not to go on over to Joyce's to
spend the evening with her and John, Joyce copped quite an attitude
with me, deeming me to be the "wrong" one in this situation. |
I really wish
that Joyce had just stayed out of this incident since this was
really about John's actions. However, Joyce has been enabling and
coddling John for years so I shouldn't be surprised that she felt
she need to jump in and "protect" her son's choices and actions -
rude or otherwise. Lately, I've been on the edge of having a problem
with Joyce, and this incident has tipped the scales. |
|
Nearly
everything I say or do gets greeted by some sort of confrontation
from Joyce. I've been trying to help out around her house (like I
have been doing for nearly 20 yrs); but it seems she won't let me
help anymore. Whenever I've tried to vacuum, she moves from where
she's been sitting and stands around, subtly getting in the way. When
I tried to
wash the dishes after a Sunday meal a few weeks ago, she hovered over my shoulder.
Eventually I stepped away from the sink (and she quickly moved in to
take my place) only to find she hadn't cleared any of the dirty
dishes from the table as she had started to do when I started to do
the dishes. I asked about whether
the garden needed weeding the other day, and instead of a yes or no
answer, she went and did it herself. (I had only wanted to know
about the weeding so I knew whether I needed to
take my gardening gloves.) |
|
I understand
that my friend Joyce is getting older; but I'm beginning to think
that she's suffering from early stages of Alzheimer's. Unfortunately,
I'm not really kidding about this either. Joyce has always been very
smart, but a bit
"flighty" and easily distracted in a conversation by whatever
crosses her field of vision. However it's gotten much worse over the
last two years. I know it's more of a problem because I've been
gently warning her about what I see as these "early signs" and she
has done little to "correct "these issues. Either Joyce is
having focus problems, early stage dementia, is dumb (and she's too
much of a "reader" for that to be the reason), or just plain being
rude. |
|
Actually it is
probably
rudeness that may just be the problem. She has spent so many years
now living in such hatred against her husband that her attitude of
"always being right and fighting to prove it" has spilled over into
her relationships with the other people in her life. Others may give
her the benefit of the doubt of repeating her stories several times
within an hour to the same people, spouting off about subjects she
doesn't know enough about, talking over or interrupting anyone else
talking, or just ignoring the current topic of conversation to talk
about whatever her eye and attention have currently fallen upon; but
after having her confront me about John, I just haven't been able to
let her slide anytime that she has continued with these rude
actions. Needless to say our interactions over the past week have
been pretty bitchy. I really have tried to go over several
times to work on this situation; only to have Joyce escalate the
conversation to another argument. |
|
I'm not really
certain how the situation with Joyce is going to work out in the
long run. We had a few arguments on the phone and in person; and
we've decided to to not talk about quite a bit of this for the time
being. |
|
mikie vs John
part 2 |
To top it off, after John
has been a gaming addict, a "nobody" as a roommate for 6 months, and
the cause of this latest uproar - suddenly, now when I'm fed up with
him, now he's all "better", happy and talkative. He's even left his
beloved World of Warcraft game for hours at a time. (I know, that's
a totally amazing change!) |
|
Too bad he didn't have this
"change" sooner when I might have cared. However, I started off the
first of May, living my own life with only minimal interaction with
John, and I'm not really ready to "give him another chance". Why
should I always be the one to compromise and make things all "happy
like they were" all over again. Hmm, you'd also think
that if John were this changed, that he'd be getting up before 2pm
or doing the dishes after I cook dinner; but I guess the change in
his life didn't include any changes in his behavior around the
house. Just his statement of his change of life is enough, I guess.
 |
|
You know what pisses me
off the most about this situation with John - I knew it would kind
of be like this. I just didn't think it would be this bad
though. I really hadn't forgotten why I had kicked him
out of my 14th street house years ago (he had lost his job, wasn't
looking for another one, and couldn't even cook the food I paid for
and brought into the house); but I was desperate to find shelter for
me and the boyz before the bank repossessed the house and left us on
the street (we don't even have a car to sleep in anymore
so I can never afford to lose the roof over our heads). |
|
I'm not really
certain how the situation with John is going to work out in the long
run. I have learned that though he is medicated now, he is much less
stable than I had assumed. While he claims that he is currently
going through a "depression" cycle of his bi-polar condition,
reality is quite the opposite as he's obviously in a "manic" phase. I've also seen how he insular life over the last few years has led
him to an inflated opinion of his ideas and viewpoints. Of course, since I have to live in the same house with
him, I have tried to talk through these issues nicely or I've just
done my own thing and left John to his own devices. |
|
John vs
John |
While on the
topic of John, I should give you an update (unfortunately this is just
an update and not a resolution) about his food stamps. Over a week
and a half
after turning in his application, John finally got a notice for the
phone interview. Of course, the phone call still won't come for
until later next month (June 9th), so it will still be several weeks
until John receives any food stamp assistance. |
|
However, I got a bit nosey and now know that it will take even
longer until John gets any assistance. While he was out I checked
the paper from welfare to see when the phone interview was scheduled
and saw that they have the WRONG phone listed that they will be
using to call John. Of course, I tried to "fix" this problem by
mentioning to John that welfare had originally had the wrong phone
number for me; but without even looking at his paper, John told me
that they had already "called" him and "verified" the phone number. |
|
Besides not having the
correct phone number for John, there's another reason he's not going
to be approved for assistance when they call him. Along with the schedule for the phone interview, welfare had sent
an addressed/stamped envelope along with a list of papers that John
needed to send before the interview (papers like the house lease,
utility bills and payments, etc). When I asked John about whether he
needed that paperwork (I've had it lying out ready for him so long
that I've had to update the stack of bills and payment receipts
twice in the last 12 weeks), he claimed that "they already have all
that information" and simply mailed back one signed form that they
needed from him.
What this means is that after the interview is finished on the 9th,
the caseworker will mail another envelope for those requested bills,
etc. which John will need to mail back. I'd say that's going to add
at least another week (if not two to three depending on how soon
John returns the information). With some luck (ha! )
John might be able getting his stamps by the middle of June, which
will be over 3 months since I told him that he was eligible. |
|
Of course, if John would just follow directions (apply before 2pm for
an immediate interview, send in copies of his bills, etc) he
wouldn't have to be so "depressed" by his life. You'd think that
someone with a bi-polar condition would have been given some
counseling/instructions on basic techniques to combat depression.
(Keep lists, set goals, change your venue) Or
if he had really cared about himself, he could have spent some of
his online time researching methods to deal with a bi-polar
condition, mania, or depression instead of playing WOW until 4 in
the morning. As how it often happens with most people, John is his
own worst enemy. |
|
mikie 4 mikie |
(Heaven knows, not only have I gone online to learn as much about HIV
as possible; but I've had to study up about depression and grief.
If you think I do all my projects just because I'm bored or
something, then you're very
sadly mistaken. Keeping active is one of the few things that keeps me from going
insane or sinking down into a deep depression. As I told Joyce the
other day, it's not that I "have all this energy"; it's that I've
been living a manic life all these years trying to offset the grief
and frustration. Thankfully, being active is a self-fulfilling balm
for depression. The more you accomplish, the better you'll feel. ) |
|
mikie and Mike |
Of course,
anything could change on the home front with these problems that I'm
having and the odds are pretty good that something will happen.
Over the years, I have told just a very few friends that I would
always be there to help out. One of the things that I, and then Jim
and I, had offered to our good friend Mike P was a place to live, if
he needed it. I thought Mike be our original third roommate (instead
of Sean); but Mike had gotten a new restaurant job and new
apartment at the same time when I was moving into my new house. He's
always been a hard worker who has paid his way through life.
Recently, he's been having problems with his boss - who just happens
to be his landlord too. |
|
I've already
been chatting with Mike about my latest problems with John and
Joyce, so he knows my situation isn't the best. Mike's plan has been
to hang onto this job (by not saying anything, not causing any
disturbances, and just letting things "ride" for a while at his
work) until the end of Summer; then Mike wants to move from
Massillon and come live with us. How that addition to my home will
change my life, I haven't even begun to consider. |
|
Though I do
plan to graciously fulfill my (and Jim's) promise and offer Mike a
place to live, this decision does have one huge downside. I'm going
to have to give up a room. Once again, I'll have to move my computer
into my bedroom and put all my stuff back into one single room.
Sigh!
The things we do for our friends. At least when I do this for this
friend, I do know that he's a good enough, smart enough, and
gracious enough guy that living with him won't be a bad thing.
Actually it would probably be kind of nice living with a REAL
roommate for change.
 |
|
mikie vs mikie |
If you can
bear with me just a little bit longer (thank you and bless you dear
friends), I have an issue about myself, one "internal" issue, that I need to get off my
chest while I'm venting. I don't really think anyone will have the explanation
or answer I would need; but it is another thing that's been banging around in my
head lately with everything else. So here goes . . .
On top of all the problems that I've been dealing with this past
year, really, I have to ask:
Why the
h-e-double-hockey-sticks am I getting healthier?!?!? |
|
Don't
get me wrong. I really am very happy with that situation. I mean, no
one likes feeling sickly and weak or throwing up.
I used to despise the life I had back when I was "half sick" all the
time. I much more enjoy being able to really "live" this life I
have. Though I still
throw up semi-frequently , the amount has decreased tremendously this
year ; and it's a small price to pay for the health I've regained
since 1999. I love this life where I'm able to
ride my bike, rather than barely able to drag myself around in the
house wondering if I could hold out when the waves of nausea swept
over me. |
|
But it's tough
being this well without Randy, without Jim, without my own home,
without a car, and without a job. |
|
There's a part
of me that just has to wonder why I'm still living when the living
has been filled with such sorrowful events. Even through I've
endured the lost of two partners and easily a dozen pets (counting
dogs and cats), I have more sorrowful events ahead, within just the
next few years, as my final three cocker spaniels boyz age and pass
away. Oh, I
do definitely remember ALL of the wonderful times I had with my men and
my kidz who are gone and just the remembering brings me such joy; but losing all
of them has been a hard price to pay for the joy and love they gave
me. It just doesn't seem "right" somehow that they are all gone, and
yet I'm still here. Not to mention the fact that after 17+ years of
being HIV+, I just celebrated the first full year of a stable, fairly-well health
status. |
|
It's quite
possible, even after this long, that with the viral load suppressed
so low for so long (this whole year, you know WooHoo!) that the HIV has gone dormant in
"reservoirs" in my lymph nodes, etc. As long as it doesn't "wake up"
(slacking off on my meds allowing resistance to build up, getting really sick, etc), I could
continue to get even "weller" (probably not a lot more;
but at some could be possible) as time goes by. Though I welcome feeling better, it's not
something that I planned to have happen in my 17th year of living
with AIDS.
At this point in my life, with all the bad things (fires, deaths,
burglaries, etc) that happened without any warming, I can only imagine how much of a problem "being
well" is going to be in my
future.

Yes, I really believe that if I get "too well", that something horrible
could happen to me.
No. Really.
It's just my kind of luck.
(I'm really not pessimistic. I'm just worrying about possible
realities so I'll be prepared. )
|
Maybe they'll take my
meds!! Just like those other disasters (fires and such, like having my
SS income amount reduced) really happened, don't scoff at the idea
of this happening. It might already be happening in CA if they don't get their
budget fixed, as the ADAP program there could be shut down. It's
through a payment by Ohio ADAP that I get a medical card to get my
meds. It's scary knowing it's only the meds that keep me
from dying and I have to rely on a "troubled" government to supply
those meds. |
|
That's all why I'm afraid of
getting "too healthy", or working again or even moving
back to North Carolina.
It's scary not knowing what the future might hold and what path to
take. |
|
mikie-then vs mikie-now |
Ah, now we are nearly getting
to the end of my long ranting, and the part my Mom has been waiting
for - the part about going back to North Carolina. (Hang on just a
bit more, Mom ) No, I haven't
actually made any decision to make that move; but as I mentioned
earlier, I've never truly considered the idea as much as I am doing
right now. Frankly, it's no wonder this incident with Joyce and John
has led me to thinking about my future. When else (except maybe my
birthday -and surviving two pneumonias - date) would I consider such
matters than in the middle of May juxtapositioned by the deaths of
my two partners. It's been a year since Jim's passing, and I'm not
in any "fog" like I was last Summer. A year ago, I was grieving and
putting off any life-altering decisions until the end of Summer.
Perhaps looking back now, I can more rationally think about
life-altering decisions than jumping into quick-fixes like the
decisions that put me where I am today. |
|
When Randy
passed away 15 years ago, I hadn't ended up in the quandary I'm in
today. Because I knew Randy's death was impending for a while, I had
time to get "used" to the idea that Randy would be leaving me (if
such a thing as "getting used to" was even possible). Not only was
that helpful to me emotionally (becoming accustomed to know that I
would be "single" soon); but it gave me plenty of time to start
"preparing" for my life and well-being after Randy would be gone.
When Randy passed away, I had control of my own house, a roommate to
help with expenses, and I still had a houseful of dogs. |
|
During those
years, I was reluctant to move back home for several reasons. First,
I was still a young man, and even though I was beginning to suffer
the effects of AIDS, I hadn't "accepted" my own mortality. At that
point in time, I hadn't yet "emotionally" given up on my dreams of
love, life, and our pet store. So the thought of leaving Ohio at
that time seemed like I was just giving up - on my dreams and my
life. |
|
In the ensuing years, as I
got much sicker, I resisted coming home because, quite frankly, I
wasn't about to come home to be "nursed" by my mom until I died.
Part of me wasn't really certain about how good of a nurse my mom
would be
(and remember, I DID already have a real RN
around for a few years - my roomie Jodi); but the biggest part of me
just didn't want to put anyone, much less my mom, through the trials
of being a caregiver for the terminally ill. Having just done that
with Randy, I truly believed that dying away from my mom and family was the more
humane way to deal with my death. |
|
As I said
(probably ad nauseam
 ), things have been much different after
losing Jim. I had already almost been homeless because of my
poverty; but living with Jim thankfully postponed that until nearly
the time my SS check returned to it's original amount. However,
poverty forced me to abandon Jim's house and led me to looking for
somewhere else to live and a roommate to share expenses. |
|
mikie stays in OH vs mikie returns to NC |
And that
brings me, and you, full circle back around to my current problems
with housemates and friends. (Finally. I bet you thought we'd never
get to the end of this tale. )
It seems that unless I specifically ask some of my "friends" for
help that none of these friends have the initiative, drive, or even
return-friendship to proactively see how I am doing or to offer
help. Shouldn't real friends be returning my kindness with their
kindness? Shouldn't friends be contributing something more than just
conversation and in return expecting more than just my service? |
|
So now that I'm in a month
book-ended by the deaths of my partners, and a year out from losing
the last one, I just know
that "this" life is not one I like at all and it HAS to change. And that falls into what I'm always saying, that when things are not
as you would like them, the only way to change things is with some
hard work and time. As I said at the first of this whole section, I
really thought that by now I had done enough and had waited long
enough for things to improve; but my disappointment with my current
situation shows that I haven't invested either enough time or work
yet to reach a good resolution to my problems of housing, friends,
and living life as a two-time widower. |
|
The thoughts of one
possible solution, of returning home to my family, have begun to
swirl around in my head with more clarity and weight than they've
ever had in the 23 years that I've lived in Ohio. However, if
returning to NC is my next option, I have to put my nose to the
wheel and begin to direct my efforts and patience to that line of
resolution. I've always dreaded putting my finances and medical
assistance to the test to see how well they hold hold from leaving
the state of Ohio and going to either the state of NC or SC; but
perhaps it's finally time to see how much a move to another state
might actually change or not change my benefits. |
|
Plus, I also need to take
this time to see what help the members of my family could provide.
Thankfully, with my Social Security check back to it's full amount,
I do have a stable income of about $700 per month. And with my
health doing so well, I'm actually healthy enough to handle the
physicality of such a drastic change in my life. Next, I'll need to
be calculating the costs of the move and saving up for that and
checking with relatives about helping me find a new home, doctor,
etc. and whatever other help they could provide me and boyz if we
move back to the Carolinas. |
|
The first time when I
moved between NC and OH, I wasn't even 30, full of pep and vitality,
embarking on a grand adventure with the love of my life and my first
cocker spaniel. That's a vast difference from moving from OH to NC,
now when I'm nearly 50 and have been living with AIDS for over 15
yrs.; wounded from the loss of, not one, but two loves; and left
with three old and aging spaniels. It would definitely be a HUGE
change in my life and will take some time and hard work, if such a
move is to, or does, happen. |
|
Unless the house burns
down or gets blown apart by a tornado (either "could" happen ),
it'll take a while to make a decision about staying in OH or moving
back home to NC. I'll be sure to keep everyone updated as I make
some decisions and see what options are available. |
|
|